49 kids finally have a place to call home Nov 22, 2009
Lexie has a genetic condition called osteogenesis imperfecta, which makes her bones very brittle, as well as dwarfism. She has had three surgeries in the past two years and is being treated with human growth hormone, her mother said. (Pittsburgh Post-Gazette, PA)
Tokay grad files claim over Grape Bowl accessibility Nov 21, 2009
The freshman at University of the Pacific suffers from Osteogenesis Imperfecta, a condition that makes bones extremely fragile. He has suffered more than 30 bone fractures in his life and is confined to a wheelchair. (Lodi News Sentinel, CA)
China sets up fund to help people with brittle bone disease Nov 7, 2009
BEIJING, Nov. 7 (Xinhua) -- A charity fund was set up here Saturday to aid patients with Osteogenesis imperfecta (OI), often known as brittle bone disease. The fund, "China-Dolls care and Support Association", launched by the China Social Welfare Education Foundation (CSWEF), will focus on improving public knowledge of OI and other rare diseases, and providing social and legal assistance to patients and their families. (Xinhuanet, China)
A Fragile Balance Oct 15, 2009
To the Editor: In their description of a patient with osteogenesis imperfecta, Bitton et al. (July 2 issue)1 allude to the patient's remark that his dentist noted "thin tooth enamel," although on clinical examination the "teeth appeared normal." During enamel formation, there is production of matrix protein that mineralizes, but no collagen is involved ... The changes observed on dental radiography in many cases of osteogenesis imperfecta are. (New England Journal of Medicine)
Gallagher: Eagle star finds silver lining in his bad break Sep 22, 2009
Hillinger has osteogenesis imperfecta, a genetic disorder that has caused him to suffer more than 60 fractures in his short life. Hillinger knows well what the Eagle senior is going through. (Sioux City Journal)
Biker Chick Lexi CharbonneauBike Ride Benefits Child With Brittle Bone Disease Sep 2, 2009
Lexi was born with osteogenesis imperfecta, "brittle bone disease," a condition that has caused her to suffer 65 fractures in her young life. She is unable to walk and can't run and play like other children her age; a simple tumble could cause multiple broken bones and a host of other problems. (Voices, CT)
Actress won't let disability dim her stars Aug 7, 2009
She was also, however, born with osteogenesis imperfecta, a bone-crippling disorder that can mean a lifetime of health problems and physical disability ... Richard's condition, also known as Brittle Bones Disease, is a genetic disorder "characterized by fragile bones that break easily," according to the Osteogenesis Imperfecta Foundation. (CNN -- Health)
Bone's material flaws lead to disease Aug 5, 2009
-- The weak tendons and fragile bones characteristic of osteogenesis imperfecta, or brittle bone disease, stem from a genetic mutation that causes the incorrect substitution of a single amino acid in the chain of thousands of amino acids making up a collagen molecule, the basic building block of bone and tendon ... The different forms of severity in brittle bone disease correlate with a particular genetic mutation; some amino acid substitutions for glycine create more severe forms of... (EurekAlert!)
Shriners stage motorcyle rally to help hospital Jul 17, 2009
The hospital treats children with limb deficiencies/deformities, arthrogryposis, cerebral palsy, hip problems, juvenile idiopathic arthritis, spina bifida, neurological disorders, osteogenesis imperfecta, specialized plastic surgery/scar revision, rickets, burn injuries, spine deformities and sports injuries. Children are eligible to receive care if they are younger than 18 with a treatable orthopedic condition. (Brainerd Daily Dispatch)
Baby on BoardPilots for Christ help 1-year-old patient Jun 19, 2009
(Osteogenesis imperfecta). A congenital (present at birth) disease most often inherited from a parent and frequently caused by a defect in the gene responsible for producing type 1 collagen, a component of strong bones. (Paragould Daily Press, AR)
Strong in adversity Jun 18, 2009
Sim, 40, was born with a congenital bone condition called osteogenesis imperfecta and fractured a bone for the first time when he was just 40 days old. True grit: No matter how hard life is, dont give up, and you can do better than you expect, says Datuk Sim Ooi Hong. (The Star Online, Malaysia)
Framingham man is honored for charity work Jun 6, 2009
He was recently awarded the 2008 Thelma Clack Lifetime Volunteer Award for his work to find a cure for osteogenesis imperfecta, a brittle bone disease ... The Wyman family suffers from a mild form of osteogenesis imperfecta (OI), a brittle bone disorder ... The Legislature declared Saturday to be Osteogenesis Imperfecta Day. (Framingham TAB, MA)
Review of Jodi Piccoult's Handle Wi... May 26, 2009
International bestseller Jodi Piccoult's Handle with Care is a captivating narrative about life with a little girl suffering from Osteogenesis Imperfecta ... This time the structure of the story is based on five-year-old Willow O-Keefe who has Type III Osteogenesis Imperfecta, or brittle bone disease. (Suite101.com)
Tokay High Grape Bowl graduation not certain Apr 18, 2009
Hixon has osteogenesis imperfecta, a disease that makes his bones brittle, and had surgery on his spine Wednesday. He is worried he will be in a weakened state for graduation, which he said will add to the difficulty of pushing his wheelchair across an uneven field. (Lodi News Sentinel, CA)
Arts and Entertainment Apr 13, 2009
Louis theater students presented one of the most famous plays by who most consider to be the greatest playwright to ever have lived, William Shakespeare. "Macbeth" at the Touhill Performing Arts Center had a two-weekend run from April 2 to April 11. (The Current Online, MO)
Handle With Care Apr 4, 2009
The Sydney Morning Herald: national, world, business, entertainment, sport and technology news from Australia's leading newspaper. Reviewed by Margaret RiceApril 3, 2009. (Sydney Morning Herald -- Entertainment)
Thumbs up, thumbs down Mar 28, 2009
"I'm not sad," said Milca, who was born with osteogenesis imperfecta. "I'm always smiling.". (Fresno Bee -- Opinion)
'Handle With Care' centers on a brittle child and fragile relationships Mar 20, 2009
The central figure of the story is Willow, who suffers from a brittle-bone disease called osteogenesis imperfecta, or OI. By the time she is 6 1/2, she has endured 68 broken bones, countless surgeries, and endless rehabilitation. Willow's story is told primarily through the voices of her mother, Charlotte; her father, Sean, a 19-year police veteran; and her 12-year-old sister, Amelia, who is overweight, bulimic, and out of control, having spent much of her childhood taking a back seat to her... (Boston Globe)
* FEATURE :Glass doll fights pain to find fulfilment on track Mar 17, 2009
Tseng Kuan-hua (a) is often called glass doll because of his condition X osteogenesis imperfecta (OI), better known as brittle bone disease. Tseng faces life with a smile, even when in intolerable pain. (Taipei Times, Taiwan -- Business)
BOOK REVIEW: 'Handle with Care', By Jodi Picoult Mar 17, 2009
It raises several issues, foremost being the birth defect called osteogenesis imperfecta ... After some additional tests, discussions and consultations, it is discovered that the fetus suffers from osteogenesis imperfecta. (Mattoon Journal-Gazette, IL)
Picoult's life is far from wrenching novels Mar 3, 2009
But Picoult stresses that although Jake's surgeries were hard on the family, she has never faced the reality of having a disabled child like the little girl with osteogenesis imperfecta in Handle With Care. In fact, Picoult suspects it might be maternal superstition that drives her to delve into the sorts of problems that leave parents awake at 3 a.m. "Maybe I write these kinds of novels to create an imaginary safety net for my own family," Picoult says. (USA Today -- Life)
Author Jodi Picoult Mar 3, 2009
Willow is a little girl who was born with osteogenesis imperfecta (OI), which is commonly known as brittle bone disease. Willow has the most severe form you can have without dying at birth. (Time.com)
Sweetheart Ball raises funds for Easter Seals Feb 10, 2009
Young Jake became well known to the community last year when the television show Extreme Makeover: Home Edition came to town and built a new house with safety features suited to help Jake who suffers from osteogenesis imperfecta, or brittle bone disease more independent. This has been Easter Seals extreme dream. (Pekin Times, IL)
