Alomar hoping for election to Hall of Fame Nov 20, 2009
Away from the spotlight, Alomar has been teaching at youth baseball camps and helped raise funds for adrenoleukodystrophy, a disease that impacted two of Hirschbeck's sons. Alomar was involved in an explosive lawsuit earlier this year in which his ex-girlfriend alleged he made her have unprotected sex even though he had AIDS.. (News & Observer -- Sports)
Gene Therapy Helps 2 Kids Suffering From Rare Brain Disease Nov 7, 2009
Best known from the movie "Lorenzo's Oil", adrenoleukodystrophy, or ALD, is a rare genetic disease that, in its most devastating form, destroys the coating of nerve fibers in boys' brains. Without that coating, called myelin, the neurological system breaks down. (Fox News)
After setbacks, small successes for gene therapy Nov 7, 2009
An international team of researchers is reporting the successful treatment of two children with adrenoleukodystrophy, or ALD, in which the fatty insulation of nerve cells degenerates ... An international team of researchers is reporting the successful treatment of two children with adrenoleukodystrophy, or ALD, in which the fatty insulation of nerve cells degenerates. (Honolulu Star-Bulletin)
Gene Therapy for Fatal Brain Disorder 'Just the Beginning' Nov 7, 2009
Pioneering work may offer hope for patients with adrenoleukodystrophy ... THURSDAY, Nov. 5 (HealthDay News) -- The reported success of gene therapy in treating two children with adrenoleukodystrophy (ALD) brings hope to patients with the potentially crippling and fatal brain disorder and their families, says a nonprofit group that supports ALD research. (MEDLINEplus)
Gene therapy halts brain disease Nov 6, 2009
The international team used a disabled form of human immunodeficiency virus (HIV) to deliver working genes to two boys with the brain disease X-linked adrenoleukodystrophy (ALD). Their success may help shape future treatment. (MSNBC -- Health)
2 children suffering from adrenoleukodystrophy saved thanks to the ELA Association Nov 6, 2009
Andres who received gene therapy to treat his adrenoleukodystrophy together with Dr. Cartier and Guy Alba, founding president of the ELA Association. The ELA association and Zinedine Zidane, its emblematic ambassador, are proud to announce a world premiere: the results regaring the gene therapy in adrenoleukodystrophy conducted in France have just been published in the prestigious journal Science ... Gene therapy on adrenoleukodystrophy: a world premiere. (EurekAlert!)
Gene Therapy Technique Slows Brain Disease ALD Featured In Movie 'Lorenzo's Oil' Nov 6, 2009
In a pilot study of two patients monitored for two years, an international team of researchers slowed the onset of the debilitating brain disease X-linked adrenoleukodystrophy (ALD) using a lentiviral vector to introduce a therapeutic gene into patient's blood cells ... Related Press Briefing in France: A press conference related to the forthcoming Science paper, "Hematopoietic Stem Cell Gene Therapy with a Lentiviral Vector in X-linked Adrenoleukodystrophy," by Dr. Nathalie Cartier and... (Science Daily)
Salzman named new Cardiokine CEO Oct 8, 2009
She will continue to lead The Stop ALD Foundation, driving research and development of cutting-edge therapies for adrenoleukodystrophy, a life-threatening neurodegenerative disorder. Most Read Stories. (Philadelphia Business Journal, PA)
Rare-disease patients priced out of drugs market Jun 4, 2009
LONDON, England (CNN) -- The 1992 Hollywood movie "Lorenzo's Oil," depicts the true story of Lorenzo, a five-year-old boy who suffered from adrenoleukodystrophy (ALD), a rare and incurable disease that slowly destroys the entire nervous system. Michaela Damin and her son, Nick, who suffers from an extremely rare disease that affects the heart. (CNN -- Health)
VISTA: Woman plans cross-country trip to raise awareness about deadly disease Mar 29, 2009
Parked outside the brewery restaurant was a recreational vehicle donated by a friend that Sherwood decorated with her son Sawyer's name and signs urging people to learn more about ALD ---- or adrenoleukodystrophy. "My son was so courageous during his illness," Sherwood said. (North County Times)
